LATEST NEWS
AxD RESEARCHPranam Chatterjee, recipient of EndAxD funds to study AxD, receives NIH grant to expand AI platform to target diseases
September 17, 2024
"The EndAxD award was instrumental in getting the NIH grant and the projects are very complementary. The results of the R35 will help us be more specific in targeting GFAP and I look forward to continuing to work on Alexander Disease with our research." - Pranam Chatterjee | Read Full Article Here |
IONIS Update on Clinical Trial
July 19, 2024
Read the letter below for more information and details from IONIS. Letter Here
Astellas Announces Sponsored Research Agreement with UMass Chan Medical School
June 27, 2024
Astellas Pharma US, Inc. has teamed up with UMass Chan Medical School to advance research on a groundbreaking gene therapy for Alexander disease, an ultra-rare and fatal condition. This innovative collaboration aims to bring new hope to patients through adeno-associated virus (AAV) vector-mediated therapy. The research, led by Dr. Jun Xie and Dr. Guangping Gao at ...
Empowering Families Affected by Alexander Disease Through Groundbreaking Research
March 15, 2024
We are excited to share that End AxD has funded the innovative research conducted by the Chatterjee Lab at Duke University. As part of our ongoing commitment to supporting families affected by Alexander Disease, we are proud to contribute to the groundbreaking work of this esteemed research team. ...
End Of Year Giving Invitation
December 15, 2023
Happy holidays to the Alexander Disease Community!As we celebrate the holidays, we are grateful for the blessings of community. 2023 has been a tough year for so many, but we remain grateful and hopeful. Hopeful for a treatment, hopeful for a cure, grateful for the clinical trial, and for all the Drs. and researchers who have dedicated their lives to find answers to ...
Save the Date! Golf Fore Grayson! - April 29th, 2024
October 6, 2023
We are back on the calendar for the 3nd annual Golf Fore Grayson! The tournament will be held on April 29th, 2023 at the Signal Mtn. Golf and Country Club.
United Leukodystrophy Foundation Conference '23 - AxD Session Links
September 8, 2023
Hey Alexander Disease Community! We're excited to share some highlights from the recent United Leukodystrophy Foundation conference, where the latest advancements in Alexander disease research and treatments were shared. Here's a recap of the sessions you won't want to miss:1️⃣ Alexander Disease Insights 🧬Learn about the most recent research breakthroughs and ...
Webinar Recording Available Now: AAV-medicated Gene Silencing (August 2023)
September 7, 2023
If you weren't able to join us on Sunday, August 6, 2023 for Dr. Gao’s update regarding “AAV-mediated Gene Silencing for the Treatment of Alexander Disease” the recorded version of the webinar is now available! Watch Recording Here