For many, receiving the initial diagnosis of Alexander Disease is terrifying and isolating. The good news is: you are not alone. Whether you or someone in your family have been recently diagnosed, there is an entire community here for you. If you are here to support a friend or loved one with Alexander Disease or another leukodystrophy, there are so many ways for you to help.
The End AxD Mission is “To be a catalyst for research and development of a treatment, and eventual cure, of Alexander Disease, and to help those with this disease and other types of Leukodystrophy get the care they need.”