Tyler Kincaid
What is your role/focus on the End AxD board?
Fundraising
Why did you want to serve?
I want to do everything in my power to serve the AxD community and help fund research that might one day lead to a cure.
What do you want to accomplish?
I want to help End AxD become an organization that will benefit families and research far into the future. I want it to be a resource for our community, not only for fundraising but for information. For so many of us, when we received this diagnosis we were told there is no cure and nothing we can do but take our kids home and love them as they deteriorate. I want this to change, I want people and Doctors to know that there is an organization out there with a wealth of knowledge and resources that can help. An organization that can direct people to the best Neurologists, Therapists, let them know about clinical trials and how to apply for them, and update them regularly on what is happening with the latest research. I hope End AxD can become something that will offer a small measure of hope in a devastating reality.
Just a few words that you want to convey to others.
I love working with people and hope I can make a difference for this community.